Category Archives: Myositis

Please Meet Emma, my Junior Reviewer

This is Emma, who has had to fight not only Juvenile Myositis, but Leukemia!

Emma Loves My Little Angel

Emma has an indomitable spirit and a contagious smile, although spending much of her young life at Duke Hospital and Ronald McDonald House!  This is her comment about My Little Angel from her mother:

“She loved it. She has read it so much that she knows it by heart 🙂 she shows it off to everyone?!”

Emma Conley has also just been named the Mid-Atlantic States Miss Heart of the USA the “2017 Wise Country Petite Miss Heart of Freedom”!

“Emma is the 9 year old daughter of Anthony and Ida Conley of Wise County, VA.  Emma was diagnosed with Juvenile Dermatomyositis at the age of 5 which is a rare autoimmune disease…18 months into treatment she was diagnosed with APML, a rare form of leukemia.  She has undergone many chemotherapy treatments and lumbar punctures but has kept her faith and her smiles.  She is a girly girl with high hopes and a bright spirit.  She has a big heart and touches the lives of everyone she meets in some way.”

Please also remember my CureJM Fundraiser, to help children like Emma…

Please remember that everyone can help by getting great books for kids and grandkids (and their friends) and support CureJM – Juvenile Myositis, an incurable children’s disease – at the same time! Please visit the on-going CureJM Fundraiser at http://sbpra.com/curejm where 50% of the cost of my award-winning children’s books goes to the CureJM Foundation. The names of many JM kids are included in my newly released 2017 book, “My Little Angel”. Please help us find a cure for kids like Addie, Alyssa, Brookelyn, Cassie, Daisy, Dmitri, Eldon, Emma, Jaden, Kinser, Tristan, Zayden  and all the other JM kids – and the many adults who also have this horrible disease!!!

 

Fun with Facebook Faces of Friends

I was delighted that Facebook offered me the opportunity to identify my friends!

Names of my Friends

Names of my Friends

Zayden is a Superhero on the Manner-Man Team

So happy to see this from Zayden’s Mom on Facebook, and wanted to share!

Zayden is a Superhero on the Manner-Man Team!

Zayden is a Superhero on the Manner-Man Team!

He’s wearing his Manner-Man Badge also!

Zayden is a CureJM warrior!  Everyone can help him fight his Juvenile Myositis by purchasing any of my children’s books through the CureJM Fundraiser at

CureJM Fundraiser

50% of the cost of the books goes to the CureJM Foundation to help find a cure for this so-far incurable children’s auto-immune disease.  You can also leave a name for any child or adult you would like acknowledged in my next book, along with Zayden and his sister Lily, as well as Jaden, Matthew, and Alyssa.

My other books include

The Golden Rule (Treat others the way you’d like to be treated)

Mice & Spiders & Webs…Oh My! (About computers and good listening)

My Fingerpaint Masterpiece (See Art with your Heart)

Gimme-Jimmy (How a Bully learns to Share)

The Magic Word (Please…and also Thank-you!)

Peter and the Whimper-Whineys (Stop whining!!)

Santa’s Birthday Gift (Santa’s Christmas gifts are birthday gifts to baby  Jesus)

 

Please help us find a cure!!

A Lovely Message from Tanea’s Dad…

Many of you know that my newest book, The Golden Rule, honors the memory of Tanea Alana Hardy who lost her brave battle with Juvenile Myositis last year.  I sent a signed copy to Tanea’s Dad for him to give to Tanea’s little sister.  Today I received the sweetest message from them, which I’m happy to share. (My heart is smiling…)

A Lovely Message

A Lovely Message

Please remember that all my books are part of a Fundraiser for CureJM where 50% of the cost of the books goes to the CureJM Foundation.

CureJM Fundraiser Link: http://sbpra.com/CureJM

Please Meet Daisy, my Video Star Kid Reviewer

Daisy Loves The Golden Rule

Daisy Loves The Golden Rule

Please meet little miss Daisy, my 5-yr-old Kid Reviewer Video Star, whose Mom informed me that her first remarks about the cover were: “Awwww, they’re all holding one of her books! Look! Gimme-Jimmy is holding his own book.”

Her Mom was kind enough to make a YouTube video of Daisy’s review, which I am happy to share…

Daisy is one of my CureJM kids as well. She faces monthly infusions and debilitating reactions, causing her to suffer greatly and have to miss school frequently. One day she announced to her mother that she was so happy that she was able to get though an entire day at school “just like a regular kid”.

So Daisy and many of my other Kid Reviewers can benefit from participation in my CureJM Fundraiser at CureJM Fundraiser where 50% of the cost of the books goes to the CureJM Foundation. Please help us find a cure!!

(My books are also part of a similar fundraiser for imbullyfree.org at http://sbpra.com/imbullyfree.  Daisy doesn’t like bullies either!)

Thanks so much, Daisy, for sharing your story with me! Sending love…

Please meet Aly, my creative Kid Reviewer!

Please meet 6-yr-old Alyssa, one of my “Kid Reviewers”, who proves that a picture is worth a thousand words…

Aly16 copyHer mother adds, “Can you understand what it says?

Though basically it means that she loved it.  Many thanks.”

Just in case:

  1. The brother and sister are looking for something great.
  2. I think they are looking for the ruler but it turned to be a rule
  3. It is important to be nice

Thank you, Sherrill S. Cannon

(Incidentally the “Sherrill S. Cannon” looks just like the font in the title!!)

How about that last line? It is important to be nice

No more words necessary, other than

Thank You, Aly! I love your review… and you!!!